TranspariMED works to end evidence distortion in medicine.
Failure to register and fully report clinical trials harms patients, wastes taxpayers' money, and slows down the development of new treatments, vaccines and cures.
TranspariMED uses research-driven advocacy to develop and promote policy solutions to this ongoing public health crisis.
TranspariMED often collaborates with other nonprofits on issues of common interest.
Past and present collaborators include:
-
Collaboration for Research Integrity and Transparency at Yale Law School (CRIT)
-
Concilium Scientific
-
Stichting Farma ter Verantwoording (Pharmaceutical Accountability Foundation)
TranspariMED is a member of the European Alliance for Responsible R&D and Affordable Medicines.
Set up in March 2017 by transparency campaigner Till Bruckner, TranspariMED has to date received external funding (less than £30,000 total) exclusively via individual research grants provided to its founder by HealthWatch, a UK registered charity that does not accept any funding from the pharmaceutical industry. TranspariMED's work is cross-subsidized through the consulting work of its founder (no pharma clients) and income from a part-time research followship at the QUEST Center of the Berlin School of Health. Any future funding will be promptly and fully disclosed on this website.
TranspariMED supports the AllTrials campaign and encourages other organizations to do the same, but is independent from AllTrials.
All content on this website is the sole responsibility of TranspariMED. Unless explicitly stated otherwise, all TranspariMED outputs are produced without external funding and should not be taken to reflect the views of HealthWatch or other parties. Visitors are welcome to repost and reuse all content on this website as long as they credit TranspariMED as the source and/or link back to this website (Creative Commons BY 3.0 license).
Contact
Email: tillbruckner-AT-gmail-DOT-com
Mobile: +44 (0)7424 617017
Till Bruckner
Warning: Transparency and accountability nerd
-> Founder of TranspariMED
-> Advocacy manager with Transparify
Formerly with AllTrials and Transparency International.
TranspariMED in the media
TranspariMED's work has been cited by national media in the United States, UK, Poland, Italy, Greece, Germany, France, Czech, Belgium, Spain and Austria, as well as by science and medicine publications worldwide.
Clinical trial disclosure e data transparency: obbligo o opportunità?
Pharmastar, 05 November 2020
FDA may fine clinical trial sponsors that don’t report data
BMJ, 24 August 2020
Openbaarheid van medicijnonderzoek helpt artsen, bedrijven en patiënten
NRC, 21 August 2020
Universiteiten maken resultaten van medicijnonderzoek nauwelijks openbaar
NRC, 19 August 2020
FDA finalizes penalties for clinical trial sponsors that don’t share data, but critics say they fall short
STAT News, 18 August 2020
FDA Finalizes Enforcement Procedure for ClinicalTrials.gov Reporting Requirements
CenterWatch, 17 August 2020
Changing Landscape of Clinical Trials Data Capture and Reporting during Covid 19 Pandemic
PharmaTimes, 14 August 2020
Klinische Studien: Verschollen im Register-Dschungel
Deutsches Aerzteblatt, 03 August 2020
Forschung im Leerlauf
Apotheken Umschau, 01 July 2020
Unis publizieren weiterhin kaum in EU-Datenbank
Forschung & Lehre, 24 June 2020
Verschwendete Daten
Sueddeutsche Zeitung, 23 June 2020
Plus de la moitié de la recherche européenne sur le Covid-19 risque d'être gâchée
Hospimedia, 23 June 2020
臨床試験結果登録公開に関するUAEMと TranspariMED報告書和訳について： 国際情勢と日本における課題
Rinsho Hyoka（Clinical Evaluation), 2020
Ιατρική έρευνα χωρίς δημόσια καταγραφή γίνεται
Pressenza, 23 June 2020
Transparency group warns of Covid-19 trial ‘research waste’
Research Professional, 19 June 2020
Advocacy Group Worries European COVID-19 Trials Won’t Publish Results
FDA News, 19 June 2020
Could COVID research end up in the bin?
POLITICO Pro, 18 June 2020
Un informe alerta de que dos de cada tres compañías europeas que investigan una cura para el COVID-19 jamás han compartido resultados de ensayos clínicos como exige la UE
Business Insider, 18 June 2020
Some Covid-19 trial sponsors never posted other study results in an EU database. Will they hide data again?
STAT News, 17 June 2020
Danish regulator eyes sanctions against trial sponsors that fail to post results
STAT News, 11 March 2020
Mangelnde Transparenz bei Medikamentenstudien
Wiener Zeitung, 25 Feb 2020
Viele Studien verschwinden in der Schublade
ORF, 25 Feb 2020
Nur wenig Transparenz bei klinischen Studien in Österreich
Der Standard, 25 Feb 2020
Wissenschaftsskanal: Deutsche Universitäten verheimlichen Forschungsergebnisse
Clixoom Science & Fiction, 21 Feb 2020
Medizinforschung: Gießener Fachbereich und JLU weisen Kritik zurück
Giessener Anzeiger, 07 Feb 2020
Τα αποτελέσματα πέντε μεγάλων κλινικών μελετών για αντικαταθλιπτικά παραμένουν στο σκοτάδι
Pressenza, 30 Jan 2020
W Polsce wyniki co piątego badania klinicznego nie są upubliczniane
Medycyna Prakyczna, 30 Jan 2020
Cochrane für konsequentere Veröffentlichung von Studienergebnissen
Aerzteblatt, 28 Jan 2020
EU transparency advocates rejoice after top court ruling
POLITICO, 23 Jan 2020
European court upholds controversial EMA transparency rules for clinical trial data
STAT News, 22 Jan 2020
Trial Non-Reporting a European as well as a US disease
Applied Clinical Trials, 21 Jan 2020
EU court judgment on transparency rules — what you need to know
POLITICO, 21 Jan 2020
Distancing design of phase III trials from drug company influence
BMJ, 20 Jan 2020
UK Heads For Full Trial Transparency
Pink Sheet, 15 Jan 2020
Transparency Advocates Urge Upholding EMA’s Access To Documents Policy
Pink Sheet, 06 Jan 2020
Johna: Ergebnisse klinischer Studien müssen transparent sein
sgp INSIDER (Germany), 03 Jan 2020
"Ergebnisse klinischer Studien müssen transparent sein"
AerzteZeitung (Germany), 03 Jan 2020
Deutsche Universitäten vernachlässigen Veröffentlichung klinischer Studien
Aerzteblatt (Germany), 03 Jan 2020
Unikliniken halten Studienergebnisse zurück
Deutsche Apotheker Zeitung (Germany), 02 Jan 2020
Ergebnisse von Studien kaum veröffentlicht
Deutsche Presseagentur (Germany), 31 Dec 2019
Münchner Unis schlampen bei Veröffentlichung klinischer Studien
Bayerischer Rundfunk (Germany), 31 Dec 2019
Transparimed: Uni Mainz verheimlicht Studienergebnisse
Deutsche Unis halten Studienergebnisse zurück
Spiegel Online (Germany), 31 Dec 2019
Halten Unikliniken Studienergebnisse zurück?
AerzteZeitung (Germany), 31 Dec 2019
Unikliniken halten Studienergebnisse zurück
Pharmazeutische Zeitung (Germany), 31 Dec 2019
Norddeutsche Unis verstecken Studienergebnisse
Unis verheimlichen Studienergebnisse
Tagesschau (Germany), 30 Dec 2019
Vergessene Studien
Sueddeutsche Zeitung (Germany), 30 Dec 2019
Unis veröffentlichen Medizin-Studien nicht vorschriftsgemäß
Deutschlandfunk, 30 Dec 2019
Who Has the Right to See Clinical Trial Data? (Germany)
Applied Clinical Trials, 30 Oct 2019
Columbia University and Clinical Trials: In Thy Light Shall We See the Light
TrialSiteNews, 13 Sept 2019
Columbia needs to do a better job at reporting clinical trial results (op-ed)
Columbia Spectator (US), 12 Sept 2019
U.K. patient groups demand action on trial data nondisclosure as politicians ramp up pressure
Fierce Biotech, 26 August 2019
Les CHU français sont à la traîne sur la transparence des résultats d'essais cliniques
Hospimedia (France), 19 July 2019
Too many drug makers and universities fail to report trial results in Europe
STAT News, 03 July 2019
Transparência em baixa
Revista Pesquisa (Brazil), 07 June 2019
Evropské univerzity ve velké míře ignorují povinnost zveřejňovat výsledky klinických hodnocení
Vesmir (Czech Republic), 03 June 2019
Moins d’un essai clinique universitaire sur cinq respecte les règles de publication
Hemato a la Une (France), 02 June 2019
Clinical trial registry reporting: a transparent solution needed (editorial)
Lancet Oncology, 01 June 2019
The unreported results that are still undermining evidence-based medicine
Cancerworld, 30 May 2019
Fehlende Transparenz bei klinischen Studien
Neues Deutschland (Germany), 09 May 2019
Sperimentazioni cliniche e trasparenza. Quasi tutte le università europee violano le norme Ue
Quotidiano Sanita (Italy), 05 May 2019
Università: c'è scarsa trasparenza sulle sperimentazioni cliniche
Il Sole 24 Ore (Italy), 03 May 2019
Test clinici: il Registro europeo esiste ma gli istituti europei lo ignorano
Il Sole 24 Ore (Italy), 03 May 2019
European universities dismal at reporting results of clinical trials
Nature, 30 April 2019
Clinical trials in Europe: less than a fifth report within 12 months
BMJ, 30 April 2019
EU universities are miserably lax at reporting clinical trial results, analysis suggests
Endpoints News, 30 April 2019
What study findings? Most European universities fail to report clinical trial results
STAT News, 30 April 2019
Europas Medizinunis wenig transparent
ORF (Austria), 30 April 2019
Essais cliniques: le silence coupable des universités
Le Soir (Belgium), 30 April 2019
Universiteiten stellen patiënten bloot aan onnodige risico’s [front page story]
De Morgen (Belgium), 30 April 2019
Universiteiten lappen regels rond klinische proeven aan hun laars: “Patiënten blootgesteld aan onnodige risico’s”
HLN (Belgium), 30 April 2019
Les universités ne publient pas suffisamment les résultats de leurs essais cliniques
Le Specialiste (Belgium), 30 April 2019
'Not a minor misdemeanor': New report finds more than 80% of trials are still unreported
Outsourcing Pharma, 30 April 2019
UK universities report more clinical trial results than EU
TrialSite News, 18 April 2019
UK universities show the way in reporting clinical trial results
BMJ, 17 April 2019
Top Academic Centers Flouting Trial Reporting Requirements, Report Shows
CentreWatch, 01 April 2019
Europe's academics failing to report their clinical trial results [paywalled]
APM Health Europe, 29 March 2019
Some, Not All Results
Genome Web, 29 March 2019
Lack of Transparency in Clinical Trials Results Harms Us All
TrialSite News, 27 March 2019
Top US institutes still aren’t reporting clinical trial results on time
Nature, 26 March 2019
Data suggest US, UK universities fall woefully short on reporting clinical trial results
Endpoints, 26 March 2019
Many leading universities are still failing to report clinical trial results
STAT News, 25 March 2019
EMA implored to improve clinical trial reporting
Outsourcing Pharma, 18 February 2019
Patients at risk as UK universities fail to disclose results of clinical trials
Daily Telegraph, 24 January 2019
Doctors demand to see medical device safety evidence in Europe
ICIJ, 30 November 2018
Doctors demand to see evidence on safety of medical devices approved in Europe
BMJ, 30 Nov 2018
MPs voice concern over clinical trials transparency
PharmaTimes, 31 October 2018
Sponsors ‘still have further to go’ as 50% of trials go unreported
Outsourcing Pharma, 31 October 2018
Call for government to ensure that all clinical trials report their results
Ekklesia, 31 October 2018
Searching for clinical trials: what patients want
Research4Me think tank report, 17 August 2018
Why sponsors need a global view of clinical trial compliance
The Pharma Letter, 17 June 2018
Roundtable: experts share their views on clinical trial transparency
Pharmaceutical Technology, 09 May 2018
Las conclusiones de las investigaciones medicas no son de fiar
Discovery Salud #213, March 2018
Removing the blindfold on medicines pricing
The BMJ, 26 February 2018 [cites 2017 guide for policy makers]
Almost half of all EU medication has no published results, and here’s why
Silicon Republic, 24 January 2018 [cites UK university study results]
Industria Farmacéutica: Como el afán de lucro, los fallos regulatorios y los conflictos de interés causan muerte y despilfarro de recursos públicos
No Gracias, 22 December 2017
Rules on reporting trials must be better enforced, say health integrity groups
BMJ, 13 December 2017
Results of clinical trials ‘missing’ from registries
Times Higher Education (THE), 17 August 2017
Aberdeen University to launch investigation after report uncovers clinical trial failures
The Herald, 21 May 2017
Articles and op-eds
Deutsche Universitäten machen Ergebnisse klinischer Arzneimittelstudien unzureichend öffentlich
Bundesgesundheitsblatt, 11 November 2020
Where Are the Results of These Five Clinical Trials of Antidepressant Drugs?
Mad in America, 28 January 2020
Trials and errors
Fabian Society, 06 December 2019
Common sense wins out as a quiet revolution sweeps across the NHS
Public Sector Focus, 27 June 2019
How safe are our drugs?
New Economics Foundation blog, 22 March 2019 (with Adrian Bua from NEF)
Medical research waste: expensive to ignore, cheap to fix
Reform think tank blog, 29 January 2019 (with Rachel Cooper from Transparency Int.)
European countries must take action on unreported clinical trials
Policies for Equitable Access to Health (PEAH), 21 November 2018
Crackdown on unreported trials is good news for researchers
Research Fortnight, 14 November 2018
Transparency can help the NHS save money and improve patient care. Here’s how.
Reform think tank blog, 07 November 2018 (with Rachel Cooper from Transparency Int.)
More Transparency Is Needed to Fight Grand Corruption in the Pharmaceutical Sector
The Global Anticorruption Blog, 27 June 2018
Waste in Medical Research Threatens Sustainable Development Goals Health Targets
Policies for Equitable Access to Health (PEAH), 07 May 2018
National Institute of Mental Health Violates Law on Posting Clinical Trial Results
Mad in America, 19 March 2018
An Open Letter in Support of FDA’s Clinical Study Report Pilot Project
The BMJ, 23 January 2018 [co-signatory]
Brexit threatens progress on opening up clinical trials
Research Fortnight, 22 November 2017
Where's the data? Missing trial results undermine pandemic preparedness
Devex, 14 November 2017
Clinical trials transparency at UK universities: problems and solutions
HealthWatch UK newsletter, issue 106, autumn 2017
Grantees, Reveal Thy Findings: A Push by Funders for Transparency in Medical Research
Inside Philanthropy, 28 July 2017
Medical research in Bristol violates international transparency guidelines
Bristol Cable, 20 July 2017